Related: Black Women Die Earlier And More Often Of Breast Cancer Should They Be Screened Sooner
In some ways, Walker was lucky, she said. She received her metastatic breast cancer diagnosis in July of 2015, and her doctors treated her with the hormone therapy drug fulvestrant. With it, she was able to continue working as a hospice nurse. Nearly seven years later, its still the only drug that shes on. While she has occasional bone pain, she said, its not as rough on me as I know other treatments can be.
But a few years after her diagnosis, she experienced a stroke and a pulmonary embolism, which forced her to stop working as a nurse. With her new time, she started working as a patient advocate and, at the San Antonio Breast Cancer Symposium, met another metastatic breast cancer patient and epidemiologist, Marina Kaplan, who is the reason behind BECOME, Walker said. Actually going into that symposium, she was in liver failure, she recalled.
Kaplan had a poster on clinical trial and patient outcomes but had very few Black participants in her study and wanted to better understand why. Walker agreed to help her survey Black patients on how they felt about clinical trials, but Kaplan never got the chance to do the study. She passed away due to her disease in 2020, Walker said.
African American Breast Cancer Alliance
Being There to Share, Support, Survive!
To educate and support Black/African American women and men in the survivorship of breast cancer.
Email contact available with a Pro subscription
1 W Lake St Apt 423
Minneapolis, MN 55408
Legal name of organization: African American Breast Cancer Alliance, Inc.
EIN for payable organization: 41-1730489
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form 990 for 2012 and 2011.
African American Breast Cancer Awareness
The Alliance House Community Coalition has been award proclamations from the State of Tennessee, Knox County government and the City of Knoxville for its work around addressing the disparities in breast cancer and black women.
Our racism and health initiative under AHCC is to Address Racism as a Public Health Crisis. The recognition by state and local governments has identified the second week of September as African American Breast Cancer Awareness Week in Tennessee.
Despite best efforts to improve disparities in breast cancer outcomes and while studies show a decrease in the mortality rates of women with breast cancer Black women still have double the 5 and 10 year mortality rates compared with white women and still have an occurrence of a 60% mortality rate in the state of Tennessee.
AHCC has a statewide campaign to pre-register 1000 state residents. We need 1000 pre-registrations by June 2023. Commit to help change the attitude towards breast cancer awareness and testing for Black women in this state.
AHCC has gained approval to commission a state breast cancer license plate.
Free breast exams, DNA testing and mammogram screenings
Assisting breast cancer warriors and survivors with direct services
FUNDING is “KEY!!!” EARLY DETECTION is “KEY!!!” EDUCATION is KEY!!! DIET is “KEY!!!” COMMUNICATION is “KEY!!!”
IT’S NOT ENOUGH FOR YOU TO PRE-REGISTER BUT YOU HAVE TO SHARE THIS CAMPAIGN WITH EVERYONE.
Lung Cancer & Tobacco
Lung cancer is the easiest cancer to prevent. So why is it the #1 cancer killer in Louisiana? More than 80% of lung cancers are caused by smoking, and that includes those killed by secondhand smoke. Learn how to quit, the dangers of secondhand smoke and e-cigs, and what we can do to save ourselves!
LCP is funded mainly by the Centers for Disease Control and Prevention and requires state matching funding to meet federal guidelines. LCP is housed at LSU Health New Orleans School of Public Health.
Cervical Cancer & Hpv
No one should ever die from cervical cancer, which is why we provide no-cost Pap tests to Louisiana women who qualify. We also educate people at all levels including parents, doctors, the general public and more to make sure boys and girls are getting the HPV vaccine to prevent cancers after theyre grown.
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The Use Of Bevacizumab In Metastatic Breast Cancer
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Cancer Care Ontario is the Ontario governments principal cancer advisor and a division of CCO.
Ontario Renal Network
The Ontario Renal Network advises the Ontario government on chronic kidney disease and is a division of CCO.
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Related: National Academies Report Cites Urgent Need To Recruit More Diverse Participants For Clinical Trials
Winn said much of the bias is often on the clinician and researcher side. Theyll say, Well, they cant make it to the trials because its going to be extensive, and theyre going to need transportation. But how do you know that? The researchers already spoken for the patient and made up a story for why they cant make it, he said.
There are also biases in the way clinical trials are designed that make it harder for many people of color or people of low socioeconomic status to participate, Gralow said. We need to make it easy for them to participate, she said. So many ridiculous things we do that arent necessary. Like these narrow windows that say this scan or that procedure has to be done exactly at 12 weeks plus or minus two days. Its just not convenient for the patient her day off is Friday, and she cant get it plus or minus two days.
And trials are also often not designed with inclusion of Black participants in mind, Walker said. For instance, the incidence of certain comorbidities that are higher among African Americans may result in exclusion from a trial even if it may not have an impact on a drugs performance, Walker said. Were excluded a lot because of high blood pressure or diabetes or something, she said. I just want us to have a chance to live and have the quality of life like everybody else.
Also Check: Does Breast Cancer Metastasis To Bone
Contributions From Black Doctors & Scholars
May Edward Chinn, M.D. was a pioneer in cancer research. In the early 1930s, Chinn studied cytological methods for cancer detection with George Papanicolaou, noted for his work on the Pap smear test for cervical cancer. She became an advocate for cancer screening to detect cancer at its earliest stages.
was the first woman to be elected president of the New York Cancer Society. Dr. Wright was a professor of surgery, head of the cancer chemotherapy department, and associate dean at New York Medical College in 1967. She was the highest-ranked Black woman at a nationally recognized medical institution at the time.
- Wright, L. T., Wright, J. C., Prigot, A., & Weintraub, S. . Remissions caused by tri-ethylene melamine in certain neoplastic diseases. A preliminary report. Journal of the National Medical Association, 42, 343â351.
- Mohla, S., Sampson, C. C., Khan, T., Enterline, J. P., Leffall, L., Jr, & White, J. E. . Estrogen and progesterone receptors in breast cancer in Black Americans: Correlation of receptor data with tumor differentiation . Cancer, 50, 552â559.
- Nagel, S., Chung, E. B., DeWitty, R. L., Jr, & Leffall, L. D., Jr . Colorectal cancer in young black patients. Journal of the National Medical Association, 80, 37â40.
- Paul, H., Jr, Barnes, R. W., Reese, V. E., Childress, M. H., Scott, V., & Leffall, L. D., Jr . Crohn’s disease in black patients. Journal of the National Medical Association, 82, 709â712.
Clinical Trails Genetics Research
African American women are less likely to develop breast cancer but are more likely to die from it. Researchers are trying to find answers that might be discovered in clinical trialsbut Black women are repeatedly underrepresented in these studies. Clinical trials are especially important for Black women and the considerations necessary to improve participation.
However, there are individual and systemic barriers that cause a lack in Black womens participation in oncological clinical trials. Some of these barriers are:
- Lack of understanding about clinical trials that would specifically help African Americans
- Black people cancer experiences are genetically unique and more aggressive.
- Mistrust about being a research guinea pig due the historical Tuskegee Institute Experiment.
- The patient never finds out about clinical trials from their doctors even though most of them are open to participating in one.
- Systemic bias and racism in medical institutions.
Find a Minnesota Clinical Trial at Metro Minnesota Community Oncology Research:
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Where We Work
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What We Know
We have been thinking a lot of about these discrepancies, how we can raise awareness about them, and the ways we can ultimately change them. The higher mortality rate for Black women diagnosed with breast cancer is not that of coincidence but instead rooted from a long history of injustice and inequality. Black women are not inherently less likely to survive breast cancer, it is instead lack of access healthcare, screenings, and education that keep Black women in America at a higher mortality rate than their white counterparts.
ACCORDING TO THE AMERICAN CANCER SOCIETY
African American women have the highest mortality rate from breast cancer as they tend to be diagnosed later and with more aggressive cancers. Breast cancer incidence rates are higher among Black women than white women for women under age 45. The 5-year relative survival rate is 83% for Black women compared to 92% for white women.ACCORDING TO THE CENTER FOR DISEASE CONTROL AND PREVENTION
Breast cancer death rates are 40% higher among Black women than white women. Black women are more likely than white women to get triple-negative breast cancer.
RESOURCES & MORE INFORMATION
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